Policy asks:

- Restore funding for Congressionally Directed Medical Research Program (CDMRP) & protect ME/CFS as a topic area

- Protect & restore the CDC’s Chronic Fatigue Syndrome Program

- Fund the NIH’s ME/CFS Research Roadmap (in collaboration with #MEAction and #NotJustFatigue)

- Support 10-year follow-up to the 2015 IOM/NASEM report

- Ensure ME/CFS is included in NIH restructuring discussions

Details:

https://solvecfs.org/wp-content/uploads/2025/07/Congressional_Briefing_061625Final.pdf

@mecfs @longcovid

3/n

#USPol #MEcfs #LongCovid #POTS

More quotes:

"We also hosted our annual EmPOWER M.E. virtual forum, designed to give patients practical tools and legal knowledge to navigate life with complex chronic illness.

This year’s main session focused on the life-saving practice of pacing — including physical, emotional, cognitive, practical, and sensory strategies …"

Recording of the June 27 EmPOWER M.E. forum:

https://www.youtube.com/watch?v=to9xPPuRM1o

@mecfs @longcovid

4/n

#MEcfs #LongCovid #POTS #ChronicIllness #PEM #StopRestPace